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Showing posts with the label plaquenil

Meanders in the Night

For an array of reasons, mostly and not without exception, one book manuscript and other things have me introverted.  So, I thought I'd republish something I wrote a few years ago for a now silent Lupus mag.  I think this was was the third Lupus article I wrote . . . the first, in the summer of 2008, made my parents speechless as they learned of high school chaos and general teenage insanity that coincided my 16 year old self and a fresh diagnosis.  I was 31 that year.  Now . . . I'm 38 and still meandering on the path.  More than half my life has been marked by Lupus.  Tis, tis. This one    remains one of my favorite pieces.  Of course, memories of Istanbul do more than suffice for a pleasant meander. This one, here, from November 2010 does more than speak the call of my current days. Lying in bed on a chilly night, too tired to think or work, with achy joints and pleurisy in my heart and kidneys my mind always ponders. Oh, and m...

Jackie O. That is all.

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So, I'm the type of gal to wear pearls with blue jeans.  Yes, that is true.  Really, if you've read anything on here then it shouldn't be a shock.  Thus, my saying I made a Jackie O style coat . . . well, before you raise your eyebrow and say "Hey, that ain't what you normally wear," remember the pearls and jeans.   Thus, I made a Jackie O.  And I wore it with jeans.  Faded, should be retired, jeans.  And Converse kicks.  And a wool knit tee.   Yea. I redefine classy.   That was me on an Instagram shot.  Snazzy, I know.   I mean, look at that . . . isn't she a beauty? That coat, fits like a dream.  Of course, I wore it open all day as it was almost too warm for it . . . but it being NYC and fall, well . . . yea, coat one minute, the next half naked.  Repeat all day.   My hair decided to go '90s retro and pretend my grunge days of Nirvana love were in town.  Ignore the unruly man...

Bombshells of Summer

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As this year has run, and as I've attested, there has been a bought of Lupus hell and body image horror.  Okay, probably more horror on my end  . . . but still.  No matter how secure a woman is, shit still creeps in.  Everyone, and I mean, everyone has had it at come point.   With that being said, last summer I bought Heather's first pattern--that Bombshell --and some inexpensive black swimsuit material to try it out.  Then I lost the will to scrutinize myself in the mirror, in a swimsuit.  I mean, come on . . . who in the hell enjoys that torture? Even at home, in decent lighting?  So, it sat.  On my shelf.  Glaring at me like a maladjusted bitch ready to pounce.   And then I found myself inventorying my patterns and fabric.  In that midst (which the patterns are nearly half cataloged and the fabric is all noted and marked), I told myself I had  to do this.  Had to do it by summe...

C'est la via and the old side of body image

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As of late the days are getting longer, or so I hear.  Though, there's still stale, dingy colored snow lurking on the ground . . . in March.  C'est la vie en  New York.  Word is that there is snow, there isn't snow in the forecast.  Who knows . . . all I know is that the pace of life and the dreary days of winter take their toll on anyone.  I've craved and eaten more citrus fruit than I have in my entire life, and in the course of that I've struggled with the toils of Lupus and swollen joints.  When I had to see my doctor for international clearance and got the godsend of a plaq script (while still being devoid of health insurance) it all came in the perfect moment. A little more than a month later and, well, I'm near my mojo again.  C'est la via.  Plus vrai . . . Of course, as I've mentioned more than once (most recently  ) body image is always a Pandora's Box of hell shaped goo that leaks and seeps out a...

White Shroud

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Oh sweet baby Jesus I've been busy . . . especially since I haven't posted in two weeks.  So without further ado, here's a few things across the way these days. At the beginning of January I ventured to the depths of AHA hell, or some such, as post (once I was back home) I got crafty in the house.  These fabulously tacky pillows are nothing but pure awesome.  Some Anna Maria Horner velour, some fringe from the shop by the Ditmars Ave stop, two random zippers, and making up shit as I went along gave me this.  One side is leopard, one the dots. Up.  Don't lie, you know you want some.  They are that awesome. There was a few runs through the park.  Sweet baby it's been cold. Of course, there were also several days of frozen water ways.   Yea, it says something about frozen rivers . . . in the heat of the city too.   Though, on instagram folks got the see the Extreme Plaid Matching: Weekend Edition.  ...